Biobanking is flourishing. Techniques and technologies are evolving rapidly. Demand for harmonised standards, especially to facilitate cross-border data and biosample sharing and database interoperability, is mounting. Within this changing environment, the need to develop appropriate, legitimate and effective human genetic database governance frameworks - at national, regional and international levels - is...
Human genetics research is undergoing rapid and dramatic growth. Over recent years, human genetic databases, or 'biobanks', have burgeoned in number, size and sophistication. Many countries are developing population-scale collections, such as UK Biobank, to investigate complex common diseases. Meanwhile, both biomedical researchers and criminal forensic scientists are seeking greater...
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