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PETNewslettersIssue #591
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BioNews

Issue #591

Comment

Image by Peter Artymiuk via the Wellcome Collection. Depicts the shadow of a DNA double helix, on a background that shows the fluorescent banding of the output from a DNA sequencing machine.
CC BY 4.0
Image by Peter Artymiuk via the Wellcome Collection. Depicts the shadow of a DNA double helix, on a background that shows the fluorescent banding of the sequencing output from an automated DNA sequencing machine.
Comment
27 September 2012 • 3 minutes read

Study of patients' experiences highlights need for national strategy for rare diseases

by Stephen Nutt

A report released recently by Rare Disease UK (RDUK) demonstrates how patients and families affected by rare diseases frequently have problems accessing good quality services, care and support. The report, 'Experiences of Rare Diseases: An Insight from Patients and Families'[1], is based on a survey of 600 patients and families conducted by RDUK to examine a wide range of topics pertinent to patients with rare diseases: diagnosis, participation in research, access to treatment, information, ...

Image by Bill Sanderson via the Wellcome Collection, © Wellcome Trust Ltd 1990. Depicts Laocoön and his family (from Greek and Roman mythology) entwined in coils of DNA.
Image by Bill Sanderson via the Wellcome Collection, © Wellcome Trust Ltd 1990. Depicts Laocoön and his family entwined in coils of DNA (based on the figure of Laocoön from Greek and Roman mythology).
Comment
27 September 2012 • 4 minutes read

Paying gamete and embryo donors: what are the right principles?

by Walter Merricks

We regard it as morally wrong to buy or sell babies. We do not allow a trade in human body parts - kidneys, organs or blood. Commercial arrangements to pay fees to surrogate mothers are banned. The UK's Human Fertilisation and Embryology Authority (HFEA) says there is a 'shortage' of donated gametes and embryos - in the sense that there are fewer gametes and embryos that have been donated than the number of people who would like to receive them. There are also 'shortages' of babies available...

News

Image by Alan Handyside via the Wellcome Collection. Depicts a human egg soon after fertilisation, with the two parental pronuclei clearly visible.
CC0 1.0
Image by Alan Handyside via the Wellcome Collection. Depicts a human egg soon after fertilisation, with the two parental pronuclei clearly visible.
News
27 September 2012 • 2 minutes read

Canadian court hands fertility regulation to provinces

by MacKenna Roberts

The Supreme Court of Canada has ruled that several key powers to regulate and licence fertility practices under Canada's Assisted Human Reproduction Act (the Act) should fall under provincial jurisdiction....

Image by Peter Artymiuk via the Wellcome Collection. Depicts the shadow of a DNA double helix, on a background that shows the fluorescent banding of the output from a DNA sequencing machine.
CC BY 4.0
Image by Peter Artymiuk via the Wellcome Collection. Depicts the shadow of a DNA double helix, on a background that shows the fluorescent banding of the sequencing output from an automated DNA sequencing machine.
News
27 September 2012 • 2 minutes read

Parental gene carrier testing could soon be available

by Vicki Kay

A new genetic test could lead to the elimination of hundreds of inherited diseases, US scientists claim....

Image by Alan Handyside via the Wellcome Collection. Depicts a human egg soon after fertilisation, with the two parental pronuclei clearly visible.
CC0 1.0
Image by Alan Handyside via the Wellcome Collection. Depicts a human egg soon after fertilisation, with the two parental pronuclei clearly visible.
News
27 September 2012 • 1 minute read

IVF clinics to inform patients about birth defect risks

by Dr Lucy Freem

Clinics should warn patients about the increased risk of birth defects for children conceived using fertility treatment, say the Human Fertilisation and Embryology Authority (HFEA)....

Image by Peter Artymiuk via the Wellcome Collection. Depicts the shadow of a DNA double helix, on a background that shows the fluorescent banding of the output from a DNA sequencing machine.
CC BY 4.0
Image by Peter Artymiuk via the Wellcome Collection. Depicts the shadow of a DNA double helix, on a background that shows the fluorescent banding of the sequencing output from an automated DNA sequencing machine.
News
27 September 2012 • 1 minute read

Maternal test for Down's syndrome may reduce need for invasive diagnosis

by Owen Clark

New research suggests that Down's syndrome could be detected using genetic screening, avoiding the need for invasive detection procedures....

Image by Alan Handyside via the Wellcome Collection. Depicts a human egg soon after fertilisation, with the two parental pronuclei clearly visible.
CC0 1.0
Image by Alan Handyside via the Wellcome Collection. Depicts a human egg soon after fertilisation, with the two parental pronuclei clearly visible.
News
20 January 2011 • 1 minute read

UK Department of Health publishes letter on IVF funding

by Christopher Chatterton

Over the last few months BioNews has covered the developing story that a number of PCTs across England have suspended their fertility services, citing financial constraints as a prominent factor....

Image by Alan Handyside via the Wellcome Collection. Depicts a human egg soon after fertilisation, with the two parental pronuclei clearly visible.
CC0 1.0
Image by Alan Handyside via the Wellcome Collection. Depicts a human egg soon after fertilisation, with the two parental pronuclei clearly visible.
News
14 January 2011 • 1 minute read

Birth of politician's IVF child sparks debate in Japan

by Kyrillos Georgiadis

A Japanese MP has sparked a debate over the country's attitudes towards motherhood after giving birth to a baby boy through IVF at the age of 50....

Image by Peter Artymiuk via the Wellcome Collection. Depicts the shadow of a DNA double helix, on a background that shows the fluorescent banding of the output from a DNA sequencing machine.
CC BY 4.0
Image by Peter Artymiuk via the Wellcome Collection. Depicts the shadow of a DNA double helix, on a background that shows the fluorescent banding of the sequencing output from an automated DNA sequencing machine.
News
11 October 2012 • 1 minute read

Survey suggests that Americans are willing to pay a premium for genetic tests

by Rosie Beauchamp

A recent study suggests American consumers would be prepared to pay on average up to $600 for a predictive genetic test where no direct treatment is available....

Image by Alan Handyside via the Wellcome Collection. Depicts a human egg soon after fertilisation, with the two parental pronuclei clearly visible.
CC0 1.0
Image by Alan Handyside via the Wellcome Collection. Depicts a human egg soon after fertilisation, with the two parental pronuclei clearly visible.
News
14 January 2011 • 2 minutes read

Type of treatment and cause of infertility are key factors in IVF success, study finds

by Marianne Kennedy

Scientists have found that the health of infants born through IVF depends on which techniques were used and their infertility diagnoses....

Image by K Hardy via the Wellcome Collection. Depicts a human embryo at the blastocyst stage (about six days after fertilisation) 'hatching' out of the zona pellucida.
CC BY 4.0
Image by K Hardy via the Wellcome Collection. Depicts a human embryo at the blastocyst stage (about six days after fertilisation) 'hatching' out of the zona pellucida.
News
27 September 2012 • 2 minutes read

Stem cell lines show high genetic variation, study finds

by Julianna Photopoulos

An international team of researchers have found that both embryonic stem cells (ESCs) and induced pluripotent stem cells (iPSCs) show higher genetic abnormalities than other cells....

Reviews

Image by Peter Artymiuk via the Wellcome Collection. Depicts the shadow of a DNA double helix, on a background that shows the fluorescent banding of the output from a DNA sequencing machine.
CC BY 4.0
Image by Peter Artymiuk via the Wellcome Collection. Depicts the shadow of a DNA double helix, on a background that shows the fluorescent banding of the sequencing output from an automated DNA sequencing machine.
Reviews
5 February 2013 • 4 minutes read

Book Review: The Immortal Life of Henrietta Lacks

by Rose Palmer

This is an extraordinary book about a woman who died on 4 October 1951, but whose legacy will continue exponentially. Henrietta Lacks was a poor black tobacco farmer who died, aged only 31, in the 'coloured ward' of John Hopkins Hospital in Baltimore....

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