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PETBioNewsCommentFILM: Sandy Starr and Simon Wilde discuss whole genome sequencing, newborn screening and public dialogue

BioNews

FILM: Sandy Starr and Simon Wilde discuss whole genome sequencing, newborn screening and public dialogue

Published 9 July 2021 posted in Comment and appears in BioNews 1103

Author

BioNews

PET BioNews

A conversation between Sandy Starr (deputy director of the Progress Educational Trust) and Simon Wilde (engagement director at Genomics England) about a new report on whole genome sequencing and newborn screening...

This film documents a conversation between Sandy Starr (deputy director of the Progress Educational Trust) and Simon Wilde (engagement director at Genomics England) about a new report on whole genome sequencing and newborn screening.

(If you cannot see the film below, click here to view it.)


The main themes of the conversation are as follows.
00:00 Background to Genomics England
01:21 Background to newborn screening
02:50 How the public dialogue was conducted
03:55 Converging and diverging views
05:45 Challenges posed by genomics
08:11 Discussing genomics during a pandemic
09:48 Key findings and messages of the public dialogue
11:49 What will happen next?

The report discussed by Sandy Starr and Simon Wilde is 'Implications of Whole Genome Sequencing for Newborn Screening: A Public Dialogue'.

Simon also mentions the following two reports:

  • 'Profiling the Newborn: A Prospective Gene Technology?'
  • 'The One-Way Mirror: Public Attitudes to Commercial Access to Health Data'

Sources and References

  • 08/07/2021
    Genomics England
    New public dialogue finds support for the use of whole genome sequencing in newborn screening - providing that the right safeguards and resources are in place

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