In 2017, PET and its fellow charity Genetic Alliance UK carried out a joint project entitled 'Basic Understanding of Genome Editing', funded by Wellcome. The project explored what patients and laypeople think and know about genome editing and its implications, and developed recommendations for how best to discuss genome editing in public.
Participants were drawn from the (in)fertility, genetic disease and rare disease communities. The project sought to incorporate participants' voices into the development of language and images around genome editing, and to empower participants to discuss genome editing's current uses and future potential.
Download the findings of the project below. If you have any queries about the project or about these findings, or if you would like to collaborate with PET on follow-up work, please contact us.