Talking Genomics with Patients
Progress Educational TrustInnovate Room, The Studio, 7 Cannon Street, Birmingham B2 5EP
5 March 2019 6pm (tea/coffee), 6.30pm-8pm (panel discussion)
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| A free-to-attend public event in Birmingham, produced by the Progress Educational Trust (PET) in partnership with Health Education England and its Genomics Education Programme, and facilitated by Dr Christine Patch. | ||
| The speaker panel at this event - which includes patients and parents Claudia Beard, Sabine Starr and Dr Charles Steward - is made up entirely of people who have had, and/or whose family members have had, their whole genome sequenced in order to better understand and treat a condition of known or suspected genetic origin. | ||
| This event forms part of the Genomics Conversation, a programme of activities which involves the public and stakeholders in discussions about key issues in genomic medicine. | ||
| The event also forms part of the annual Genomics Conversation Week of Action, which is being run by Health Education England and the Genomics Education Programme during the week of 4-8 March 2019. | ||
| If tweeting about this event, please use the hashtag #GenomicsConversation | ||
| Films of previous events in the Genomics Conversation programme can be found on PET's YouTube channel here. | ||
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| SPEAKERS INCLUDE | ||
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| Claudia Beard | |
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| Parent Representative for Southampton at SWAN UK | ||
| Parent of a disabled child who is participating in the 100,000 Genomes Project, has also been a Member of the Project's Participant Panel | ||
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| Sabine Starr | |
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| Patient with a rare neurological disorder | ||
| Participant in the 100,000 Genomes Project, has also been a Member of the Project's Participant Panel | ||
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| Dr Charles Steward | |
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| Genomic Scientist and Clinical Domain Lead for Epilepsy at Congenica | ||
| Parent of two children with severe neurological disorders who are both participating in the 100,000 Genomes Project, has also been a Member of the Project's Participant Panel | ||
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| FACILITATOR | ||
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| Dr Christine Patch | |
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| Clinical Lead for Genetic Counselling at Genomics England, and Reader in Genomic Healthcare at King's College London's Florence Nightingale Faculty of Nursing and Midwifery | ||
| Trustee at PET | ||
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| PARTNERS AND SUPPORTERS | ||
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