Talking Genomics with Patients
Progress Educational TrustInnovate Room, The Studio, 7 Cannon Street, Birmingham B2 5EP
5 March 2019 6pm (tea/coffee), 6.30pm-8pm (panel discussion)
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| A free-to-attend public event in Birmingham, produced by the Progress Educational Trust (PET) in partnership with Health Education England and its Genomics Education Programme, and facilitated by Dr Christine Patch. | ||
| Online booking for this event has now closed, but there are still some places available. If you should like to attend and you have not booked, please arrive at the venue in good time and we will take your details at registration. A map showing how to get to the venue from Birmingham New Street railway station can be found here. | ||
| The speaker panel at this event - which includes patients and parents Claudia Beard, Sabine Starr and Dr Charles Steward - is made up entirely of people who have had, and/or whose family members have had, their whole genome sequenced in order to better understand and treat a condition of known or suspected genetic origin. | ||
| This event forms part of the Genomics Conversation, a programme of activities which involves the public and stakeholders in discussions about key issues in genomic medicine. | ||
| The event also forms part of the annual Genomics Conversation Week of Action, which is being run by Health Education England and the Genomics Education Programme during the week of 4-8 March 2019. | ||
| If tweeting about this event, please use the hashtag #GenomicsConversation | ||
| Films of previous events in the Genomics Conversation programme can be found on PET's YouTube channel here. | ||
| SPEAKERS INCLUDE | ||
| Claudia Beard | | |
| Parent Representative for Southampton at SWAN UK | ||
| Parent of a disabled child who is participating in the 100,000 Genomes Project, has also been a Member of the Project's Participant Panel | ||
| Sabine Starr | | |
| Patient with a rare neurological disorder | ||
| Participant in the 100,000 Genomes Project, has also been a Member of the Project's Participant Panel | ||
| Dr Charles Steward | | |
| Genomic Scientist and Clinical Domain Lead for Epilepsy at Congenica | ||
| Parent of two children with severe neurological disorders who are both participating in the 100,000 Genomes Project, has also been a Member of the Project's Participant Panel | ||
| FACILITATOR | ||
| Dr Christine Patch | | |
| Clinical Lead for Genetic Counselling at Genomics England, and Reader in Genomic Healthcare at King's College London's Florence Nightingale Faculty of Nursing and Midwifery | ||
| Trustee at PET | ||
| PARTNERS AND SUPPORTERS | ||
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