Talking Genomics with Patients

Progress Educational Trust
The Studio, 7 Cannon Street, Birmingham B2 5EP
5 March 2019

Dr Christine Patch, Trustee at the Progress Educational Trust (PET) and facilitator of PET's FREE-to-attend public event 'Talking Genomics with Patients', taking place in Birmingham on Tuesday 5 March 2019 Claudia Beard, Parent Representative for Southampton at SWAN UK and speaker at the Progress Educational Trust's FREE-to-attend public event 'Talking Genomics with Patients', taking place in Birmingham on Tuesday 5 March 2019 Sabine Starr, patient with a rare neurological disorder and speaker at the Progress Educational Trust's FREE-to-attend public event 'Talking Genomics with Patients', taking place in Birmingham on Tuesday 5 March 2019 Dr Charles Steward, Genomic Scientist and Clinical Domain Lead for Epilepsy at Congenica and speaker at the Progress Educational Trust's FREE-to-attend public event 'Talking Genomics with Patients', taking place in Birmingham on Tuesday 5 March 2019

A free-to-attend public event in Birmingham, produced by the Progress Educational Trust (PET) in partnership with Health Education England and its Genomics Education Programme, and facilitated by Dr Christine Patch.
The speaker panel at this event - which includes patients and parents Claudia Beard, Sabine Starr and Dr Charles Steward - is made up entirely of people who have had, and/or whose family members have had, their whole genome sequenced in order to better understand and treat a condition of known or suspected genetic origin.
This event forms part of the Genomics Conversation, a programme of activities which involves the public and stakeholders in discussions about key issues in genomic medicine.
The event also forms part of the annual Genomics Conversation Week of Action, which is being run by Health Education England and the Genomics Education Programme during the week of 4-8 March 2019.
If tweeting about this event, please use the hashtag #GenomicsConversation
Films of previous events in the Genomics Conversation programme can be found on PET's YouTube channel here.

SPEAKERS INCLUDE

Claudia Beard Claudia Beard, Parent Representative for Southampton at SWAN UK and speaker at the Progress Educational Trust's FREE-to-attend public event 'Talking Genomics with Patients', taking place in Birmingham on Tuesday 5 March 2019
Parent Representative for Southampton at SWAN UK
Parent of a disabled child who is participating in the 100,000 Genomes Project, has also been a Member of the Project's Participant Panel

Sabine Starr Sabine Starr, patient with a rare neurological disorder and speaker at the Progress Educational Trust's FREE-to-attend public event 'Talking Genomics with Patients', taking place in Birmingham on Tuesday 5 March 2019
Patient with a rare neurological disorder
Participant in the 100,000 Genomes Project, has also been a Member of the Project's Participant Panel

Dr Charles Steward Dr Charles Steward, Genomic Scientist and Clinical Domain Lead for Epilepsy at Congenica and speaker at the Progress Educational Trust's FREE-to-attend public event 'Talking Genomics with Patients', taking place in Birmingham on Tuesday 5 March 2019
Genomic Scientist and Clinical Domain Lead for Epilepsy at Congenica
Parent of two children with severe neurological disorders who are both participating in the 100,000 Genomes Project, has also been a Member of the Project's Participant Panel

FACILITATOR

Dr Christine Patch Dr Christine Patch, Trustee at the Progress Educational Trust (PET) and facilitator of PET's FREE-to-attend public event 'Talking Genomics with Patients', taking place in Birmingham on Tuesday 5 March 2019
Clinical Lead for Genetic Counselling at Genomics England, and Reader in Genomic Healthcare at King's College London's Florence Nightingale Faculty of Nursing and Midwifery
Trustee at PET

PARTNERS AND SUPPORTERS

Health Education England, joint organiser of the Progress Educational Trust's FREE-to-attend public event 'Talking Genomics with Patients', taking place in Birmingham on Tuesday 5 March 2019
Health Education England's Genomics Education Programme of Health Education England, joint organiser of the Progress Educational Trust's FREE-to-attend public event 'Talking Genomics with Patients', taking place in Birmingham on Tuesday 5 March 2019

The Progress Educational Trust's FREE-to-attend public event 'Talking Genomics with Patients', taking place in Birmingham on Tuesday 5 March 2019, forms part of the annual Genomics Conversation Week of Action run by Health Education England and the Genomics Education Programme