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The Progress Educational Trust (PET), informing debate on assisted conception and genetics

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This week at the Progress Educational Trust (24 September 2016)

The Progress Educational Trust (PET) is currently organising and speaking at a wide variety of public events, as well as commenting in the media.

Sarah Norcross, Director of the Progress Educational Trust (PET) and Commissioning Editor of PET's flagship publication BioNews, interviewed on ITV News PET Director Sarah Norcross has been particularly busy discussing shortcomings in the public funding of fertility treatment, in her capacity as Co-Chair of the campaigning organisation Fertility Fairness.

Sarah has been interviewed about this on TV's ITV News and BBC News - watch her ITV News appearance here - and she has been interviewed on radio by:

  • Nick Robinson on BBC Radio 4's Today programme - listen here.

  • Tony Livesey on BBC Radio 5 Live - listen here.

  • Mike Parr on BBC Tees - listen here.

  • Janet Kipling on BBC Radio Devon - listen here.

  • Julia Hartley-Brewer on Talk Radio.

  • Justin Dealey and Roberto Perrone on BBC Three Counties Radio - Sarah spoke to Justin when Bedfordshire Clinical Commissioning Group was expected to announce a decision about its IVF funding (listen to the interview here), and then spoke to Roberto after it was announced that this decision had been deferred (listen to the interview here).

Nick Robinson (presenter of BBC Radio 4's Today programme) interviews Sarah Norcross (Director of the Progress Educational Trust) Sarah is also quoted in the following news articles:

Finally, Sarah is quoted in this opinion piece by Yasmin Alibhai-Brown in iNews, while her comments to Nick Robinson on the Today programme are referred to in this opinion piece by Polly Toynbee in the Guardian.


Talk by Sarah Norcross (Director of the Progress Educational Trust) followed by screening of the film 'Gattaca', at the Victoria in Dalston on the evening of Monday 17 October 2016 Besides the funding of IVF, Sarah is also busy discussing a range of other subjects in PET's remit.

On the evening of Monday 26 September, she will be giving a talk in London entitled 'Genetic Modification: The Sky’s the Limit?' prior to a screening of the classic science fiction film Gattaca.

The talk and the screening are both organised by the Science Fiction Theatre, and are taking place at the Victoria in Dalston. Further details can be found here.


Dr Marilyn Crawshaw, Chair of the British Association of Social Workers' Project Group on Assisted Reproduction and speaker at the Progress Educational Trust's FREE-to-attend evening event 'Birth Certificates and Assisted Reproduction: Setting the Record Straight? ', taking place in London on Monday 17 October 2016Natalie Gamble, Founder of Natalie Gamble Associates and speaker at the Progress Educational Trust's FREE-to-attend evening event 'Birth Certificates and Assisted Reproduction: Setting the Record Straight? ', taking place in London on Monday 17 October 2016Meanwhile, PET is delighted to announce that its next free-to-attend public event - taking place on the evening of Monday 17 October, at University College London's Institute of Child Health - will be entitled 'Birth Certificates and Assisted Reproduction: Setting the Record Straight?', and will be a debate about the purpose and content of birth certificates in light of developments in science, medicine, law and society.

Dr Julie McCandless, Assistant Professor of Medical and Family Law at the London School of Economics and Political Science and speaker at the Progress Educational Trust's FREE-to-attend evening event 'Birth Certificates and Assisted Reproduction: Setting the Record Straight? ', taking place in London on Monday 17 October 2016Kate Litwinczuk, donor-conceived person and speaker at the Progress Educational Trust's FREE-to-attend evening event 'Birth Certificates and Assisted Reproduction: Setting the Record Straight? ', taking place in London on Monday 17 October 2016This event is supported by the Edwards and Steptoe Research Trust Fund, Oregon Reproductive Medicine, Natalie Gamble Associates and Steven H Snyder and Associates, and will be chaired by Peter Braude (Emeritus Professor of Obstetrics and Gynaecology at King's College London).

Craig Reisser, Development and International Programmes Director for Oregon Reproductive Medicine and speaker at the Progress Educational Trust's FREE-to-attend evening event 'Birth Certificates and Assisted Reproduction: Setting the Record Straight? ', taking place in London on Monday 17 October 2016Steven Snyder, Founding and Principal Partner at Steven H Snyder and Associates and speaker at the Progress Educational Trust's FREE-to-attend evening event 'Birth Certificates and Assisted Reproduction: Setting the Record Straight? ', taking place in London on Monday 17 October 2016Speakers will include Dr Marilyn Crawshaw (Chair of the British Association of Social Workers' Project Group on Assisted Reproduction), Natalie Gamble (Founder of Natalie Gamble Associates and Brilliant Beginnings), Kate Litwinczuk (donor-conceived person, and Member of the Donor Conception Network ), Dr Julie McCandless (Assistant Professor of Medical and Family Law at the London School of Economics and Political Science), Craig Reisser (UK parent by donor egg surrogacy, and Development and International Programmes Director for Oregon Reproductive Medicine) and Steven Snyder (Founding and Principal Partner at Steven H Snyder and Associates).

Click here for further details, and email to book your free place. Also follow the event on Twitter and tweet about it using the hashtag #PETrecord, and join the Facebook page for the event here.


Professor Richard Anderson, Head of Obstetrics and Gynaecology at the University of Edinburgh and speaker at the Progress Educational Trust's FREE-to-attend evening event 'Frozen Assets? Preserving Sperm, Eggs and Embryos', taking place in Edinburgh on Tuesday 25 October 2016 Alison McTavish, Cofounder and Nurse Manager at Aberdeen Fertility Centre and speaker at the Progress Educational Trust's FREE-to-attend evening event 'Frozen Assets? Preserving Sperm, Eggs and Embryos', taking place in Edinburgh on Tuesday 25 October 2016 'Frozen Assets? Preserving Sperm, Eggs and Embryos' is a free-to-attend event taking place in Edinburgh on Tuesday 25 October, produced by PET and supported by the Scottish Government.

The speaker panel includes Professor Richard Anderson (Head of Obstetrics and Gynaecology at the University of Edinburgh), Alison McTavish (Cofounder and Nurse Manager at Aberdeen Fertility Centre), Dr Mary Neal (Director of Teaching and Learning at the University of Strathclyde's Law School) and Professor Allan Pacey (PET Trustee and Head of Andrology at Jessop Fertility).

Click here for further details, and email to book your free place. Also follow the event on Twitter and tweet about it using the hashtag #PETfrozen, and join the Facebook page for the event here.


Dr Kathy Niakan, Group Leader in Human Embryo and Stem Cell Research at the Francis Crick Institute and speaker at the Progress Educational Trust's one-day conference 'Rethinking the Ethics of Embryo Research: Genome Editing, 14 Days and Beyond', taking place at University College London's Institute of Child Health on Wednesday 7 December 2016 Magdalena Zernicka-Goetz, Professor of Mammalian Development and Stem Cell Biology at the University of Cambridge and speaker at the Progress Educational Trust's one-day conference 'Rethinking the Ethics of Embryo Research: Genome Editing, 14 Days and Beyond', taking place at University College London's Institute of Child Health on Wednesday 7 December 2016 'Rethinking the Ethics of Embryo Research: Genome Editing, 14 Days and Beyond' is PET's Annual Conference, taking place in London on Wednesday 7 December. The conference is supported by Merck , the Anne McLaren Memorial Trust Fund , the Medical Research Council and Caribou Biosciences.

Baroness Mary Warnock, Patron of the Progress Educational Trust (PET) and keynote speaker at PET's one-day conference 'Rethinking the Ethics of Embryo Research: Genome Editing, 14 Days and Beyond', taking place at University College London's Institute of Child Health on Wednesday 7 December 2016 Professor Sir Ian Wilmut, creator of Dolly the sheep and keynote speaker at the Progress Educational Trust's one-day conference 'Rethinking the Ethics of Embryo Research: Genome Editing, 14 Days and Beyond', taking place at University College London's Institute of Child Health on Wednesday 7 December 2016 Conference sessions include 'The Warnock Report and the 14 Day Rule', 'The 14 Day Rule: Calling Time on Embryo Research', 'Genome Editing: CRISPR at the Cutting Edge', 'What's So Special about the Status of the Embryo?' and Keynote Addresses by Baroness Mary Warnock and Professor Sir Ian Wilmut .

Other confirmed speakers and chairs include Professor Magdalena Zernicka-Goetz , Dr Kathy Niakan, Lord George Carey , Sally Cheshire , Dr Simon Fishel , Professor Bruce Whitelaw and Professors Sarah Franklin , David Jones , Alison Murdoch and Stephen Wilkinson .

Click here for full details, including the conference agenda and how to book your tickets, and email with any queries. Also follow the conference on Twitter and tweet about it using the hashtag #petconf16, and join the Facebook page for the conference here.


James Lawford Davies, Adviser to the Progress Educational Trust (PET) and speaker at the PET event 'Testing, Testing 1, 2, 3: PGS and PGD', taking place in London on Tuesday 13 September 2016 Dr Tony Gordon, Managing Director (USA) and Lab Director (UK) at Genesis Genetics and speaker at the Progress Educational Trust event 'Testing, Testing 1, 2, 3: PGS and PGD' In other news, PET is currently going through audience feedback from its most recent public event 'Testing, Testing 1, 2, 3: PGS and PGD'.

Despite taking place on one of the hottest days of the year, this event saw Institute of Child Health packed to the rafters with an audience of 250 people, who spent two hours debating the testing and screening human embryos with a panel of experts including Dr Tony Gordon, James Lawford Davies and Professor Michael Parker plus PET Trustees Dr Sue Avery and Dr Christine Patch.

Comments PET has received from attendees include:

  • Dr Christine Patch, Trustee at the Progress Educational Trust (PET) and speaker at the PET event 'Testing, Testing 1, 2, 3: PGS and PGD' Dr Sue Avery, Trustee at the Progress Educational Trust (PET) and chair of PET's event 'Testing, Testing 1, 2, 3: PGS and PGD' 'I enjoyed the mix of perspectives and not too formal style' (genetic counselling student)

  • 'Excellent balance between the science and the regulatory implications' (fertility specialist)

  • 'Well timed, concise and readily understandable' (scientist)

  • 'Good mix of legal, ethical, counselling and testing expertise' (managing director of pharmaceutical company)

PET is very grateful to the event's sponsor Illumina and to a crack team of volunteers - including Dr Nicoletta Charolidi, Kerry Dyus, Dr Cathy Herbrand, Daniel Malynn and Clara Salice, plus a number of new faces - without whom the event would not have been possible.

FROZEN ASSETS?
Preserving Sperm, Eggs and Embryos

FREE event
Edinburgh
25 October 2016

BOOK HERE

Datalabel The UK's Leading Supplier Of Medical Labels & Asset Labels
 

RETHINKING THE ETHICS OF EMBRYO RESEARCH
Genome Editing, 14 Days and Beyond

Public Conference
London
7 December 2016

Speakers include

Professor Magdalena Zernicka-Goetz

Dr Kathy Niakan

Professor Sir Ian Wilmut

Lord George Carey

Baroness Mary Warnock

Dr Simon Fishel

Professor Bruce Whitelaw

Professor Alison Murdoch

Professor David Jones

Professor Sarah Franklin

Professor Stephen Wilkinson

BOOK HERE

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Become a Friend of PET HERE and give the Progress Educational Trust a regular donation

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