Page URL: https://www.progress.org.uk/

This week at the Progress Educational Trust (25 November 2021)


There are still a few places available at the Progress Educational Trust (PET) PET's 2021 Annual Conference, which will be held online this coming Wednesday (1 December 2021) from 9.15am-5.45pm (GMT).

Speakers at the Progress Educational Trust's FREE-to-attend public event 'Whole Genome Sequencing at Birth: Consenting Adults, Sequencing Babies', being held online on Wednesday 15 December 2021This year's conference is entitled 'Reproducing Regulation: Who Regulates Fertility and How?', and will explore the law and regulation that govern reproductive medicine and research, both nationally and internationally. Buy your tickets here now.

Additionally, the Institute of Medical Ethics has provided funding for 20 medical students to attend the conference free of charge. Medical students wishing to apply for one of these places should email sstarr@progress.org.uk

Further details of the conference are provided below. Meanwhile, registration is also open for the free-to-attend online event 'Whole Genome Sequencing at Birth: Consenting Adults, Sequencing Babies', taking place on Wednesday 15 December 2021 from 5.30pm-7.30pm (GMT).

PET is producing its 15 December event in partnership with Genomics England and its Newborn Genomes Programme. The Newborn Genomes Programme will explore – in an ethics-approved research pilot, due to be embedded in the NHS – whether and how whole genome sequencing might, in future, be offered routinely for newborn babies in the UK.

The 15 December event will see speakers including Amanda Pichini, Professor Anneke Lucassen and Dr Simon Ramsden discuss ethical and practical questions raised by sequencing the whole genomes of newborn babies. Find out more and register for your free place here. If tweeting about the event, please use the hashtag #GenomicsConversation


Sarah Norcross, Dr Nathalie Vermeulen, Andrew Powell and Fiona Fox, session chairs at the Progress Educational Trust conference 'Reproducing Regulation: Who Regulates Fertility and How?', taking place online on Wednesday 1 December 2021 Sessions at next week's PET conference 'Reproducing Regulation: Who Regulates Fertility and How?' will include:

  1. The Role of the Regulator: UK Perspectives
    Chaired by Sarah Norcross (Director of PET)

  2. Fertility Across Jurisdictions: International Perspectives
    Chaired by Dr Nathalie Vermeulen (Senior Research Specialist at ESHRE)

  3. All Families Great and Small: Changing Family Forms
    Chaired by Andrew Powell (Specialist Family Law Barrister at 4 Paper Buildings)

  4. New Frontiers: Futureproofing Fertility and Embryo Law
    Chaired by Fiona Fox (Chief Executive of the Science Media Centre)

Conference presentations will include the following.


The HFEA 30 Years On: What Needs to Change? Julia Chain, Chair of the HFEA and speaker at 'The Role of the Regulator: UK Perspectives', Session 1 at the Progress Educational Trust conference 'Reproducing Regulation: Who Regulates Fertility and How?', taking place online on Wednesday 1 December 2021
Julia Chain
Chair of the Human Fertilisation and Embryology Authority
Former corporate lawyer, currently Chair of Sadeh and Deputy Chair of Norwood

The Evolution of ART Law in Portugal: Cultural vs Political Perspectives Professor Carlos Calhaz-Jorge, Chair of the European Society of Human Reproduction and Embryology and speaker at 'Fertility Across Jurisdictions: International Perspectives', Session 2 at the Progress Educational Trust conference 'Reproducing Regulation: Who Regulates Fertility and How?', taking place online on Wednesday 1 December 2021
Professor Carlos Calhaz-Jorge
Chair of the European Society of Human Reproduction and Embryology
Professor of Obstetrics and Gynaecology at the University of Lisbon, and Head of Obstetrics, Gynaecology and Reproductive Medicine at the Hospital de Santa Maria

The CMA Guidance, Its Impact and What Next Dr Louise Strong, Director of Consumer Protection at the Competition and Markets Authority and speaker at 'The Role of the Regulator: UK Perspectives', Session 1 at the Progress Educational Trust conference 'Reproducing Regulation: Who Regulates Fertility and How?', taking place online on Wednesday 1 December 2021
Dr Louise Strong
Director of Consumer Protection at the UK Government's Competition and Markets Authority, leading on its recent publication Fertility Treatment: A Guide to Your Consumer Rights
Previously Senior Policy Adviser at the Confederation of British Industry and at Which?

Assisted Reproduction, Genetics and the Future of Humanity Dr Jamie Metzl, Technology and Healthcare Futurist and speaker at 'New Frontiers: Futureproofing Fertility and Embryo Law', Session 4 at the Progress Educational Trust conference 'Reproducing Regulation: Who Regulates Fertility and How?', taking place online on Wednesday 1 December 2021
Dr Jamie Metzl
Technology and Healthcare Futurist, and member of the World Health Organisation's Expert Advisory Committee on Developing Global Standards for Governance and Oversight of Human Genome Editing
Author of books including Hacking Darwin: Genetic Engineering and the Future of Humanity

What Is a 'Mother' in UK Fertility Law? Emily Jackson, Professor of Law at the London School of Economics and Political Science and speaker at 'All Families Great and Small: Changing Family Forms', Session 3 at the Progress Educational Trust conference 'Reproducing Regulation: Who Regulates Fertility and How?', taking place online on Wednesday 1 December 2021
Professor Emily Jackson
Professor of Law at the London School of Economics and Political Science, and former Deputy Chair of the Human Fertilisation and Embryology Authority
Author of books including Medical Law: Text, Cases, and Materials, Law and the Regulation of Medicines and Regulating Reproduction: Law, Technology and Autonomy

Help Us to Help Our Patients: How Clinics and the Regulator Can Support High-Quality Care Dr Raj Mathur, Chair of the British Fertility Society and speaker at 'The Role of the Regulator: UK Perspectives', Session 1 at the Progress Educational Trust conference 'Reproducing Regulation: Who Regulates Fertility and How?', taking place online on Wednesday 1 December 2021
Dr Raj Mathur
Chair of the British Fertility Society
Consultant Gynaecologist, and Lead for Reproductive Medicine, at St Mary's Hospital and at Manchester Fertility

From Bench to Bedside: How Can We Get Proven Innovation to Patients? Allan Pacey, Professor of Andrology at the University of Sheffield and speaker at 'The Role of the Regulator: UK Perspectives', Session 1 at the Progress Educational Trust conference 'Reproducing Regulation: Who Regulates Fertility and How?', taking place online on Wednesday 1 December 2021 Juliet Tizzard, Director of Policy and Partnerships at the Health Research Authority and speaker at 'The Role of the Regulator: UK Perspectives', Session 1 at the Progress Educational Trust conference 'Reproducing Regulation: Who Regulates Fertility and How?', taking place online on Wednesday 1 December 2021
Professor Allan Pacey and Juliet Tizzard
Allan Pacey is Professor of Andrology at the University of Sheffield
Juliet Tizzard is Director of Policy and Partnerships at the Health Research Authority

What Is an 'Add-On', and Who Gets to Decide? Professor Anja Bisgaard Pinborg, Chief Consultant at Rigshospitalet's Juliane Marie Centre and speaker at 'Fertility Across Jurisdictions: International Perspectives', Session 2 at the Progress Educational Trust conference 'Reproducing Regulation: Who Regulates Fertility and How?', taking place online on Wednesday 1 December 2021
Professor Anja Bisgaard Pinborg
Chief Consultant at Rigshospitalet's Juliane Marie Centre
Professor of Reproductive Medicine at the University of Copenhagen

What Makes an Embryo 'Chimeric'? And Why Does It Matter? Professor Insoo Hyun, Chair of the Ethics Committee of the International Society for Stem Cell Research and speaker at 'New Frontiers: Futureproofing Fertility and Embryo Law', Session 4 at the Progress Educational Trust conference 'Reproducing Regulation: Who Regulates Fertility and How?', taking place online on Wednesday 1 December 2021
Professor Insoo Hyun
Professor of Bioethics and Philosophy at Case Western Reserve University, and Director of Research Ethics at Harvard Medical School
Chair of the Ethics Committee of the International Society for Stem Cell Research, and author of the book Bioethics and the Future of Stem Cell Research

The Past, Present and Future of the 14-Day Rule Professor Sarah Franklin, Director of the University of Cambridge's Reproductive Sociology Research Group and speaker at 'New Frontiers: Futureproofing Fertility and Embryo Law', Session 4 at the Progress Educational Trust conference 'Reproducing Regulation: Who Regulates Fertility and How?', taking place online on Wednesday 1 December 2021
Professor Sarah Franklin
Professor of Sociology, Director of the Reproductive Sociology Research Group and Deputy Chair of the Reproduction Strategic Research Initiative at the University of Cambridge
Author of books including Biological Relatives: IVF, Stem Cells and the Future of Kinship and Dolly Mixtures: The Remaking of Genealogy

'Partner-Created Embryos': Time to Change the Law to Support Lesbian Couples Dr Ippokratis Sarris, Director of King's Fertility and speaker at 'Fertility Across Jurisdictions: International Perspectives', Session 2 at the Progress Educational Trust conference 'Reproducing Regulation: Who Regulates Fertility and How?', taking place online on Wednesday 1 December 2021
Dr Ippokratis Sarris
Director of King's Fertility, and Consultant in Reproductive Medicine
Honorary Clinical Senior Lecturer at King's College London, and Honorary Consultant at King's College Hospital

The Enduring Appeal of Anonymous Donor Conception Heidi Mertes, Professor of Ethics at Ghent University and speaker at 'Fertility Across Jurisdictions: International Perspectives', Session 2 at the Progress Educational Trust conference 'Reproducing Regulation: Who Regulates Fertility and How?', taking place online on Wednesday 1 December 2021
Professor Heidi Mertes
Professor of Ethics at Ghent University
Chair of De Maakbare Mens, and Research Fellow at the Research Foundation Flanders

Platonic Co-Parenting in Law and in Practice: How to Do It Right, and What Happens When It Goes Wrong Natalie Sutherland, Partner at Burgess Mee Family Law and speaker at 'All Families Great and Small: Changing Family Forms', Session 3 at the Progress Educational Trust conference 'Reproducing Regulation: Who Regulates Fertility and How?', taking place online on Wednesday 1 December 2021
Natalie Sutherland
Partner, and leader of the Modern Families department, at Burgess Mee Family Law
Resolution-accredited specialist, and Trustee at PET

An ART Law in Ireland: A Perpetual Dream Dr Edgar Mocanu, Consultant in Obstetrics and Gynaecology at the Rotunda Hospital Dublin and speaker at 'Fertility Across Jurisdictions: International Perspectives', Session 2 at the Progress Educational Trust conference 'Reproducing Regulation: Who Regulates Fertility and How?', taking place online on Wednesday 1 December 2021
Dr Edgar Mocanu
Consultant in Obstetrics and Gynaecology at the Rotunda Hospital Dublin
Honorary Clinical Senior Lecturer at the Royal College of Surgeons in Ireland

Barriers to Fertility Treatment for Solo Patients: Outdated Policies and Social Judgments Katherine O'Brien, Associate Director of Communications and Campaigns at the British Pregnancy Advisory Service and speaker at 'New Frontiers: Futureproofing Fertility and Embryo Law', Session 4 at the Progress Educational Trust conference 'Reproducing Regulation: Who Regulates Fertility and How?', taking place online on Wednesday 1 December 2021
Katherine O'Brien
Associate Director of Communications and Campaigns at the British Pregnancy Advisory Service

The Ethics of Human Embryo-Like Structures: The Closer the Knit, the Tighter the Fit Ana Pereira Daoud, researcher at Maastricht University and speaker at 'New Frontiers: Futureproofing Fertility and Embryo Law', Session 4 at the Progress Educational Trust conference 'Reproducing Regulation: Who Regulates Fertility and How?', taking place online on Wednesday 1 December 2021
Ana Pereira Daoud
Researcher at Maastricht University and at the MERLN Institute for Technology-Inspired Regenerative Medicine
Lead author of a recent overview of stem-cell-based embryo models, and their ethical and policy implications

The conference is supported by the Anne McLaren Memorial Trust Fund, the Edwards and Steptoe Research Trust Fund, ESHRE, CooperSurgical, Ferring Pharmaceuticals, Hart Publishing, Merck, the Society for Reproduction and Fertility, Theramex, TMRW Life Sciences, Vitrolife and the Institute of Medical Ethics.

Full details of the conference can be found here. If tweeting about the conference, please use the hashtag #PETconf21