This week at the Progress Educational Trust (25 November 2021)
There are still a few places available at the Progress Educational Trust (PET) PET's 2021 Annual Conference, which will be held online this coming Wednesday (1 December 2021) from 9.15am-5.45pm (GMT).
This year's conference is entitled 'Reproducing Regulation: Who Regulates Fertility and How?', and will explore the law and regulation that govern reproductive medicine and research, both nationally and internationally. Buy your tickets here now.
Additionally, the Institute of Medical Ethics has provided funding for 20 medical students to attend the conference free of charge. Medical students wishing to apply for one of these places should email sstarr@progress.org.uk
Further details of the conference are provided below. Meanwhile, registration is also open for the free-to-attend online event 'Whole Genome Sequencing at Birth: Consenting Adults, Sequencing Babies', taking place on Wednesday 15 December 2021 from 5.30pm-7.30pm (GMT).
PET is producing its 15 December event in partnership with Genomics England and its Newborn Genomes Programme. The Newborn Genomes Programme will explore – in an ethics-approved research pilot, due to be embedded in the NHS – whether and how whole genome sequencing might, in future, be offered routinely for newborn babies in the UK.
The 15 December event will see speakers including Amanda Pichini, Professor Anneke Lucassen and Dr Simon Ramsden discuss ethical and practical questions raised by sequencing the whole genomes of newborn babies. Find out more and register for your free place here. If tweeting about the event, please use the hashtag #GenomicsConversation
Sessions at next week's PET conference 'Reproducing Regulation: Who Regulates Fertility and How?' will include:
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The Role of the Regulator: UK Perspectives
Chaired by Sarah Norcross (Director of PET) -
Fertility Across Jurisdictions: International Perspectives
Chaired by Dr Nathalie Vermeulen (Senior Research Specialist at ESHRE) -
All Families Great and Small: Changing Family Forms
Chaired by Andrew Powell (Specialist Family Law Barrister at 4 Paper Buildings) -
New Frontiers: Futureproofing Fertility and Embryo Law
Chaired by Fiona Fox (Chief Executive of the Science Media Centre)
Conference presentations will include the following.
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| The HFEA 30 Years On: What Needs to Change? |  |
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| Julia Chain | ||
| Chair of the Human Fertilisation and Embryology Authority | ||
| Former corporate lawyer, currently Chair of Sadeh and Deputy Chair of Norwood | ||
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| The Evolution of ART Law in Portugal: Cultural vs Political Perspectives |  |
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| Professor Carlos Calhaz-Jorge | ||
| Chair of the European Society of Human Reproduction and Embryology | ||
| Professor of Obstetrics and Gynaecology at the University of Lisbon, and Head of Obstetrics, Gynaecology and Reproductive Medicine at the Hospital de Santa Maria | ||
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| The CMA Guidance, Its Impact and What Next |  |
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| Dr Louise Strong | ||
| Director of Consumer Protection at the UK Government's Competition and Markets Authority, leading on its recent publication Fertility Treatment: A Guide to Your Consumer Rights | ||
| Previously Senior Policy Adviser at the Confederation of British Industry and at Which? | ||
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| Assisted Reproduction, Genetics and the Future of Humanity |  |
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| Dr Jamie Metzl | ||
| Technology and Healthcare Futurist, and member of the World Health Organisation's Expert Advisory Committee on Developing Global Standards for Governance and Oversight of Human Genome Editing | ||
| Author of books including Hacking Darwin: Genetic Engineering and the Future of Humanity | ||
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| What Is a 'Mother' in UK Fertility Law? |  |
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| Professor Emily Jackson | ||
| Professor of Law at the London School of Economics and Political Science, and former Deputy Chair of the Human Fertilisation and Embryology Authority | ||
| Author of books including Medical Law: Text, Cases, and Materials, Law and the Regulation of Medicines and Regulating Reproduction: Law, Technology and Autonomy | ||
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| Help Us to Help Our Patients: How Clinics and the Regulator Can Support High-Quality Care |  |
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| Dr Raj Mathur | ||
| Chair of the British Fertility Society | ||
| Consultant Gynaecologist, and Lead for Reproductive Medicine, at St Mary's Hospital and at Manchester Fertility | ||
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| From Bench to Bedside: How Can We Get Proven Innovation to Patients? |  |
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| Professor Allan Pacey and Juliet Tizzard | ||
| Allan Pacey is Professor of Andrology at the University of Sheffield | ||
| Juliet Tizzard is Director of Policy and Partnerships at the Health Research Authority | ||
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| What Is an 'Add-On', and Who Gets to Decide? |  |
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| Professor Anja Bisgaard Pinborg | ||
| Chief Consultant at Rigshospitalet's Juliane Marie Centre | ||
| Professor of Reproductive Medicine at the University of Copenhagen | ||
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| What Makes an Embryo 'Chimeric'? And Why Does It Matter? |  |
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| Professor Insoo Hyun | ||
| Professor of Bioethics and Philosophy at Case Western Reserve University, and Director of Research Ethics at Harvard Medical School | ||
| Chair of the Ethics Committee of the International Society for Stem Cell Research, and author of the book Bioethics and the Future of Stem Cell Research | ||
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| The Past, Present and Future of the 14-Day Rule |  |
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| Professor Sarah Franklin | ||
| Professor of Sociology, Director of the Reproductive Sociology Research Group and Deputy Chair of the Reproduction Strategic Research Initiative at the University of Cambridge | ||
| Author of books including Biological Relatives: IVF, Stem Cells and the Future of Kinship and Dolly Mixtures: The Remaking of Genealogy | ||
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| 'Partner-Created Embryos': Time to Change the Law to Support Lesbian Couples |  |
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| Dr Ippokratis Sarris | ||
| Director of King's Fertility, and Consultant in Reproductive Medicine | ||
| Honorary Clinical Senior Lecturer at King's College London, and Honorary Consultant at King's College Hospital | ||
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| The Enduring Appeal of Anonymous Donor Conception |  |
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| Professor Heidi Mertes | ||
| Professor of Ethics at Ghent University | ||
| Chair of De Maakbare Mens, and Research Fellow at the Research Foundation Flanders | ||
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| Platonic Co-Parenting in Law and in Practice: How to Do It Right, and What Happens When It Goes Wrong |  |
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| Natalie Sutherland | ||
| Partner, and leader of the Modern Families department, at Burgess Mee Family Law | ||
| Resolution-accredited specialist, and Trustee at PET | ||
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| An ART Law in Ireland: A Perpetual Dream |  |
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| Dr Edgar Mocanu | ||
| Consultant in Obstetrics and Gynaecology at the Rotunda Hospital Dublin | ||
| Honorary Clinical Senior Lecturer at the Royal College of Surgeons in Ireland | ||
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| Barriers to Fertility Treatment for Solo Patients: Outdated Policies and Social Judgments |  |
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| Katherine O'Brien | ||
| Associate Director of Communications and Campaigns at the British Pregnancy Advisory Service | ||
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| The Ethics of Human Embryo-Like Structures: The Closer the Knit, the Tighter the Fit |  |
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| Ana Pereira Daoud | ||
| Researcher at Maastricht University and at the MERLN Institute for Technology-Inspired Regenerative Medicine | ||
| Lead author of a recent overview of stem-cell-based embryo models, and their ethical and policy implications | ||
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The conference is supported by the Anne McLaren Memorial Trust Fund, the Edwards and Steptoe Research Trust Fund, ESHRE, CooperSurgical, Ferring Pharmaceuticals, Hart Publishing, Merck, the Society for Reproduction and Fertility, Theramex, TMRW Life Sciences, Vitrolife and the Institute of Medical Ethics.
Full details of the conference can be found here. If tweeting about the conference, please use the hashtag #PETconf21