Rare disease treatments risk being 'entirely out of patients' reach', says MPs report
A parliamentary report has recommended a ring-fenced fund to ensure access to 'low volume, high cost' treatments for rare diseases...
by James Brooks
A parliamentary report has recommended a ring-fenced fund to ensure access to 'low volume, high cost' treatments for rare diseases...
by Siobhan Chan
The first patients from two separate ongoing studies have been treated using gene and stem cell therapies to repair damage caused by heart attacks...
Researchers have identified a gene in mice that, if faulty, increases the chances of developing ovarian cancer....
Genes involved in replenishing brain cells and their support materials are switched on during sleep, according to a study in mice...
A woman in Australia has become pregnant with her own eggs following an ovarian tissue transplant seven years after her ovaries were removed during cancer treatment....
The US National Institutes of Health has unveiled plans to trial sequencing the DNA of newborn babies, to test if it could improve paediatric medical care...
The prospect of eugenics has re-emerged in multiple new guises. The polarising power of this concept is part of its fascination, but this is not necessarily fruitful for debate or policy-making. In their booklet, Stephen Wilkinson and Eve Garrard address this problem...
Stay up-to-date on all the latest developments in the fields of human fertility and genomics. And be the first to hear about upcoming events and other announcements.
Comment
Genetic counselling - decision support or a tool for rationing?
by Alastair Kent and 1 others
This week, the new policy of American health insurer, Cigna, that requires genetic counselling before access to BRCA genetic testing, will come into effect. Reaction to this announcement has been mixed. We thought it would be interesting to compare this new policy with how genetic testing for BRCA cancer risk is delivered in the UK....