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PETBioNewsNewsAll donor-conceived people should have access to donor information, Australian committee recommends

BioNews

All donor-conceived people should have access to donor information, Australian committee recommends

Published 2 April 2012 posted in News and appears in BioNews 651

Author

Rosemary Paxman

Image by Bill Sanderson via the Wellcome Collection, © Wellcome Trust Ltd 1990. Depicts Laocoön and his family (from Greek and Roman mythology) entwined in coils of DNA.
Image by Bill Sanderson via the Wellcome Collection, © Wellcome Trust Ltd 1990. Depicts Laocoön and his family entwined in coils of DNA (based on the figure of Laocoön from Greek and Roman mythology).

A law reform committee in the Australian state of Victoria has recommended that all donor-conceived people should be able to access identifying information about their donors...

A law reform committee in the Australian state of Victoria has recommended that all donor-conceived people should be able to access identifying information about their donor parents.

Under current rules, only people conceived from gametes donated after 1 January 1998 are permitted unconditional access to donor information. People from gametes donated prior to this date may also access indentifying information, providing consent is obtained from the donor.

But people who were conceived from gametes donated before 1 July 1988, when the Infertility (Medical Procedures) Act came into effect, have no rights to access information about their donor.

The Victorian Parliament's Law Reform Committee, a joint committee with members taken from both the Legislative Assembly and Council, has recommended that the Victorian Government introduce legislation to allow all donor-conceived people, including those conceived with gametes donated before 1988, to obtain identifying information about their donors.

'While the Committee recognises that donors who donated their gametes before 1988 did so on the basis of anonymity, the Committee considers that donor-conceived people have a right to know the identity of the person who contributed half of their biological makeup', said the Committee's Chair, Mr Clem Newton-Brown, MP.

'The Committee is convinced that this right must be given precedence, even over the wishes of those donors who would like to remain anonymous'.

Some doctors have criticised the decision, warning that the proposal could compromise patient confidentiality and may be in breach of privacy guarantees previously offered to donors. Disregarding such assurances of anonymity could 'seriously undermine the public's trust in the medical profession', warned Dr Harry Hemley, President of AMA Victoria, a professional body representing doctors in the State.

The Committee said it did not want donors to be unreasonably affected by the release of information. It recommended donors should be given the option of placing a 'contact veto' should a pre-1988 donor conceived person lodge an application for information. The veto prohibits contact between the donor and donor-conceived person and would be backed by penalties for a breach. If not renewed, a veto would expire after five years and are revocable at any time by the donor.

Also included in its recommendations, the Committee called on the Victorian Government to introduce measures to ensure medical information about the donor is passed on to the donor-conceived person, and is shared with half-siblings, if there was a genetic or hereditary health risk.

It also recommends that non-identifying information about half siblings should be available to prevent people unknowingly starting a relationship with someone related to them.

A law reform committee in the Australian state of Victoria has recommended that all donor-conceived people should be able to access identifying information about their donor parents.

Under current rules, only people conceived from {GLINK(#:2315, gametes)} donated after 1 January 1998 are permitted unconditional access to donor information. People from gametes donated prior to this date may also access indentifying information, providing consent is obtained from the donor.

But people who were conceived from gametes donated before 1 July 1988, when the Infertility (Medical Procedures) Act came into effect, have no rights to access information about their donor.

The Victorian Parliament's Law Reform Committee, a joint committee with members taken from both the Legislative Assembly and Council, has recommended that the Victorian Government introduce legislation to allow all donor-conceived people, including those conceived with gametes donated before 1988, to obtain identifying information about their donors.

'While the Committee recognises that donors who donated their gametes before 1988 did so on the basis of anonymity, the Committee considers that donor-conceived people have a right to know the identity of the person who contributed half of their biological makeup', said the Committee's Chair, Mr Clem Newton-Brown, MP.

'The Committee is convinced that this right must be given precedence, even over the wishes of those donors who would like to remain anonymous'.

Some doctors have criticised the decision, warning that the proposal could compromise patient confidentiality and may be in breach of privacy guarantees previously offered to donors. Disregarding such assurances of anonymity could 'seriously undermine the public's trust in the medical profession', warned Dr Harry Hemley, President of AMA Victoria, a professional body representing doctors in the State.

The Committee said it did not want donors to be unreasonably affected by the release of information. It recommended donors should be given the option of placing a 'contact veto' should a pre-1988 donor conceived person lodge an application for information. The veto prohibits contact between the donor and donor-conceived person and would be backed by penalties for a breach. If not renewed, a veto would expire after five years and are revocable at any time by the donor.

Also included in its recommendations, the Committee called on the Victorian Government to introduce measures to ensure medical information about the donor is passed on to the donor-conceived person, and is shared with half-siblings, if there was a {GLINK(#:2316, genetic)} or hereditary health risk.

It also recommends that non-identifying information about half siblings should be available to prevent people unknowingly starting a relationship with someone related to them. {GLINK(#:2387, Counselling} and support services will also be provided to donors, donor-conceived people and anyone affected by donor-conception as part of the Committee's recommendations.

The Victorian Government has six months to respond to the Committee's report.

Sources and References

  • 28/03/2012
    The Australian
    Sperm donor identities should be revealed to children, says parliamentary committee
  • 28/03/2012
    Sydney Morning Herald
    Vic should act quickly on donors: group
  • 29/03/2012
    The Age
    'Donor' children and the right to know
  • 28/03/2012
    ABC News
    Changes to donor information laws recommended
  • 28/03/2012
    Victoria Parliament Law Reform Committee
    Inquiry into Access by Donor-Conceived People to Information about Donors
  • 28/03/2012
    Victoria Parliament Law Reform Committee
    Committee recommends all donor-conceived people have access to donor information

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