Basic Understanding of Genome Editing


In 2017, the charities Progress Educational Trust (PET) and Genetic Alliance UK carried out a joint project entitled 'Basic Understanding of Genome Editing' funded by the Wellcome Trust. The project explored what patients and laypeople think and know about genome editing and its implications, and developed recommendations for how best to discuss genome editing in public.

Participants were drawn from the (in)fertility, genetic disease and rare disease communities. The project sought to incorporate participants' voices into the development of language and images around genome editing, and to empower participants to discuss genome editing's current uses and future potential.

Download the findings of the project below. If you have any queries about the project or about these findings, or if you would like to collaborate with PET on follow-up work, please email

'Basic Understanding of Genome Editing' - Executive Summary and Key Recommendations of the Progress Educational Trust's Report, based on a project carried out in partnership with Genetic Alliance UK and funded by the Wellcome Trust 'Guidance for Scientists Explaining Genome Editing in Public' - developed as part of the Progress Educational Trust's 'Basic Understanding of Genome Editing' project, carried out in partnership with Genetic Alliance UK and funded by the Wellcome Trust 'Basic Understanding of Genome Editing' - the Progress Educational Trust's Report of a project carried out in partnership with Genetic Alliance UK, funded by the Wellcome Trust 'Basic Understanding of Genome Editing' - Annexes to the Progress Educational Trust's Report of a project carried out in partnership with Genetic Alliance UK, funded by the Wellcome Trust