The Helix of Love is a collection of poems written by parents of children with rare genetic conditions who explore their experience of rare disease, and reflect on what everyday life is like at a time when so much focuses on the promise of genomic medicine.
The collection was produced as part of the 'Ethical Preparedness in Genomic Medicine' project, a large collaborative research programme funded by The Wellcome Trust and based at Brighton and Sussex Medical School and the University of Oxford.
You can read the book, free of charge, here.
